‚ Marty Sheedy | Arthrogryposis, Arthrogryposis Multiplex Congenita, Arthrogryposis Multiplex, Prune Belly, Prune Belly Syndrome

Kassie Loves Podcast Interview

23 Feb

Hello,

Please go to http://www.labelosophy.com/ to listen to a great interview that was done a few weeks ago. It was a great opportunity to share awareness and to hopefully be able to provide some information that might help  HUMAN BEINGS with or with out disabilities. Please share this with your family and friends.

“Don’t be sheltered or shelter your Children with disabilities, because that is no good. We need to learn the same life experiences that “normal” people do. That only empowers us.” (Marty Sheedy)

Thank you,

Marty Sheedy

Interview for labelosophy.com

26 Jan

Hello,

Tomorrow I will be doing an interview with Mrs.Kassie Love from www.labelosophy.com to talk about my conditions, my web site, and projects I am involved in. I am very excited for this opportunity and I encourage you to check out her and her husband web site. It is very informative! I will post the interview once it’s uploaded.

E-mail about interview.

“Hi Marty,
Thanks so much for agreeing to the interview.  I’m thrilled.  Would Friday
Jan 27 or Sat Jan  30 work for you?  I’m available on weekdays or the
weekend.
I will send you an outline of topics we will discuss.  The interview
will center on how you lead a productive, fulfilling life with a
disability.  I will likely call you on Skype earlier that week so we
can get the interview topics in order.

Thanks again.  I can’t wait.

Kassie”

Motivational Awareness Speech

20 Jan

A speech I did over the summer to raise awareness for my conditions and the Shriners at my chiropractor Dr.Caudell’s summer telegraph cruise event.

http://www.youtube.com/watch?v=fGLIDxmyIj0

Video release of Martysheedy.com

18 Jan

Watch this video for a preview of things to come from www.martysheedy.com. Thank you!

http://youtu.be/po2EmiOXD2U

Shriners Hospitals All-Stars VS. The Detroit Red Wings Alumni

27 Mar

Prune Belly Syndrome Network

27 Mar

Prune Belly Syndrome Network

We are a volunteer organization serving people who have prune belly syndrome (also known as Eagle-Barrett syndrome) and their families and friends. We advocate for a greater awareness of PBS among the general public and the healthcare community. We encourage you to be active on our Yuku support forum, where you can post your questions, concerns, and comments about a variety of prenatal and lifetime issues. Sign up for our newsletter here.

If you are interested in meeting others who have PBS and interacting with expert physician speakers, please join us at our 11th Annual Convention in San Diego, California in July 2011! Each year, we look forward to meeting other people born with PBS as they learn that—truly—they are “not the only one.”

Of course, the information contained within this website is designed to enhance, not replace, the relationship that exists between you and your physician(s).

MISSION STATEMENT:

 The Prune Belly Syndrome Network, Inc. (PBSN) is a volunteer-led, Internet-based corporation devoted to disseminating timely and accurate information about prune belly syndrome to people born with it and their family members, physicians, and other interested parties. The PBSN provides a means for clients to share experiences and support one another. The PBSN encourages the establishment of international standards for the diagnosis and treatment of prune belly syndrome, also known as Eagle-Barrett syndrome.

www.prunebelly.org

Arthrogryposis Support Group

27 Mar

Arthrogryposis Multiplex Congenita Support Inc. 

History:
Ani Samargian created AMCsupport.org, an online Arthrogryposis Multiplex Congenita (AMC) support group in July of 2005. Ani, the mother of Abigail Marie, a child born with Amyoplasia, a form of Arthrogryposis, created the group because at the time, there was very little information available to families due to the rare occurrence of AMC. The online group was a direct result of the high volume of emails she received from families regarding a website she had created to document her daughter’s progress. During the ensuing years, the interest and activity of the online support group grew and blossomed. From the original 30 members, membership has grown to over 400 families. Once a strictly online community, AMC support brought families together for The First Annual AMC Conference, a real world gathering, in Chicago, Illinois, during the summer of 2006. A second Conference held in Arlington Texas, July 2007 brought even more families together. The largest portion of Ani’s dream was to form an IRS recognized 501(C)(3) corporation that would continue her support of families and medical professionals well into the future. With the help of an army of volunteers, and the generous contributions of Roland Pieper, an attorney whose granddaughter has Arthrogryposis, a Board of Directors was created, and work began on the daunting process of becoming a non-profit corporation. Submission of the application for the approval of the IRS occurred on October 6, 2006. On September 7, 2007, Arthrogryposis Multiplex Congenita Support, Inc. was granted Non-profit status as a 501(C)(3)corporation, and that dream became a reality.

Mission:
To provide and encourage more understanding and mutual support among anyone affected with the diagnosis of Arthrogryposis Multiplex Congenita (AMC). To create a higher standard of AMC awareness by means of Conferences, Meetings, and Studies.

Vision Statement:
To provide educational material to new parents, or soon-to-be parents regarding the diagnosis of Arthrogryposis Multiplex Congenita (AMC).

To provide a resource of information to the medical field to include but not limited to occupational therapists, physical therapists to assist them in the treatment of a child or person with the diagnosis of AMC.

Shriners Hospitals For Children

27 Mar

Shriners Hospitals for Children has a mission to:

  • Provide the highest quality care to children with neuromusculoskeletal conditions, burn injuries and other special healthcare needs within a compassionate, family-centered and collaborative care environment.
  • Provide for the education of physicians and other healthcare professionals.
  • Conduct research to discover new knowledge that improves the quality of care and quality of life of children and families.

This mission is carried out without regard to race, color, creed, sex or sect, disability, national origin or ability of a patient or family to pay.

Our vision.

Shriners Hospitals for Children will be the unquestioned leader, nationally and internationally, in caring for children and advancing the field in its specialty areas.

Please watch this video to learn the true meaning of our mission.

http://www.youtube.com/watch?v=kFJouPPoi8c

These hospitals help and have helped many children and adults with Arthrogryposis and Prune Belly syndrome that have orthopedic problems as well.  As a former patient and now shriner I am truly humbled to now be able to help others.

Marty And The Motivational Cowboy

30 Nov

Yesterday evening I met up with John Dmytryszyn also known as the Motivational Cowboy. We went over my new web site and other ideas and plans that we have been thinking about.

Last night he asked me if I could be a guest speaker with him for an upcoming event on December 9th at Macomb College. We will be speaking to local high school student councils. I am very excited and honored to be speaking to them. I will be posting pictures and video after the speech.

To learn more about the Motivational Cowboy, please go to motivationalcowboy.com

Have a Outstanding day!

Thanks,

Marty

Welcome

25 Nov

Hello Everyone,

I want to welcome you all to my new website www.martysheedy.com. I hope that you learn things here that may be able to help you in some part of your life. Through my speaking travels I hope to meet as many families with Arthrogryposis & Prune Belly Syndrome as possible.

Through connecting my work as a Shriner, executive director of the Project Scissor Gait Foundation, motivational speaker and  entrepreneur I hope to be able to Educate,Motivate,Inspire, and support as many people as possible.